Oct 21 2009 08:34 pm
I have probably used everything everyone else has. I'm now using dsp products that are amazing. The cream works on the pimples in 3 days (gone). No kidding. I dont have any lesions anymore. I have the crawling in hair and on face but ordered stardust product that takes this away also. You can contact the company to order products at morgellons-research.org or email marc at marc@s-m-g.org you will be so impressed with the cream. you can leave home again. cheap too. thank God .
Oct 4 2009 09:16 pm
P.S. Oops, one more thought to share with you - My plan is to stay on Niacin at max. dosage daily to see if I continue to get better. My brother is coming for Thankgiving and he will fix the electical device. I might then combine both the Niacin and use of the electrical device to see if it promotes a quicker end to this horrible affliction.
Oct 4 2009 09:04 pm
P.S. Regarding the electrical device my brother built for me; it did seem to help for aprox six months; but it broke and this was when I had appt with my primary doctor. I believe the eletrical current and what the Niacin does to your blood have something in common, being they both stir up, and disrupt the normal flow of the blood. Google Niaccin therapy and the book - Cure for all Disases. Mary Lynn
Oct 4 2009 08:48 pm
Dear Anne, and Suesan Martin,
I've been afflicted with Morg for over 7 years; nothing ad helped until now. My primary doctor told me there are no answers, no diagnosis, and no treatment for the skin condition I have; but because my blood test resulted with high cholesterol level, he wanted me to try NIACIN therapy before putting me on meds to ower my cholesterol. Well, lo ad behold, the parasites do not like niacin and they continue to come out. I m currently taking 500 mg NIACIN a day; one at bedtime soI don't feelthe flushing so much. I will now increase to 2x day (1,000 mg) You have to begin slowly with low dose and work up to higher dose. Most of my sores are gone. I also take 10-20 (2000mg)ea. fo Target's garlic tabs and I use Ralph's Grocery - Calamine Lotion -their generic brand-(drain the water before shaking to thicken)this will help to dry up the sores; helps me to get through the day at work. I have used Retin A on my face since it was first developed for acne years ago. I am 55 yrs old and my face has not ever had a sore on it. I've had sores that have been active for a year; now the attacks are less frequent (chronic fatique and new outbreaks does not last)I also tried electrical impulse from (9volt battery copper coils that my brother built for me (google book called Cure for all Diseases). Prayers from my family keep me strong too. I will pray for you. Take care. Mary Lynn
Sep 8 2009 07:22 am
my name is suesan martin, i have been afflicted with morgellons for 15 years at least. i have seen every kind of Dr. known. Salt Lake City University Hospital said staph with picking, they wrapped me up in fireburn gauze for a week. this just "made the pods and sores angry". i have tried everything! i have thought suicide from time to time just to be autopsied. don't worry, i got on meds for the awful depression that accompanies this stuff. i have been with my current Dr. for over 20 years, everything done has helped for a couple of days, then back with a vengance. alas, i feel forgotten and hopeless. plus nobody will hire me due to all the sores. signed.....at wits end.
Jul 9 2009 02:45 pm
I am curious to hear the experience of other IV drug users, with Morgellons. When I began to experience active Morg., my substance use habits changed dramatically.I am ure that I have increased their production, but I also suspect my usage increased, and the general damage to my body decreased. Any thoughts?
Mar 12 2009 07:10 pm
My name is Vanasin Leelanupat and I am an herbal doctor. I recently came across a web-site annedill.piczo.com where I saw you were struggling with Morgellons disease. I have seen this disease first hand and have seen the effects and pain it causes you. When I saw this I had to research it. I obtained samples from a man that had contracted this disease. With these samples I was able to come up with a formula that is able to treat this disease. At that time he had this disease over his whole body. Within weeks his treated areas were cured. I am here to help you and want to cure this disease. Please contact me by either e-mail or phone.
Sincerely,
Vanasin Leelanupat, TMD
Phone: (314) 359-4953
P.S. Phone is preferred as I do not check my e-mail daily, but I will respond back as soon as possible.
Mar 4 2009 01:21 am
Hi Anne
Im pretty sure i have this awful disease. Im scared to go to the doctor. fear they will lock me up in a mental institute or something. No one beleives me my family or my friends. They tell me they need to hear it from a DR then they will beleive. my mom has seen weird stuff on me like a little cotton ball hooked to a fiber thing in my hair the lesions. She thinks im on drugs and thats why all this weird stuff is happening to me Y WONT THEY BELEIVE ME? Now its gone to my hair i cant comb thrue it its to tangled in the shower after i put conditioner in i will comb thrue it black things come out and i will comb out these weird knots they are so hard to get out its like im pulling hair out beneath my scalp weird i know but after one combs out i feel releif one day i pulled out 5 of these knots im not sure whats in the center if its just hair or something else. They freak me out scary lookin how on earth does it get in a knot like it does? The hair looks looped in circles a perfect knot. One more? I have 5 dogs how do you know if they have it? Its like they know somethings wrong with me. one of my dogs always slept with me and layed with me on couch now she will sometimes but usually after a few min she leaves and lays somewhere else. my email is swtypie28@gmail.com Im really scared!
Nov 28 2008 10:33 pm
Hi Anna,
great work.I would welcome any advice on getting diaignosed and equally important,help with the same for my dog.Thanks again.
Chuck
suprisedme2@yahoo
Jul 26 2008 10:05 am
Dear Anne:
I am a private researcher.
One of the physicians working with us, diagnosed with Morgellons resolved lesions which had persisted for about 8 years using a 3x5 hormetic bandage.
We are looking for about ten individuals to see if these results are reproducible.
We will provide bandages at no charge, provided the individuals are willing to provide before/after photographs.
Here is a link to info page, http://dshedu.com/HowTo/Morgellons if you would like more information.
Sincerely,
Mark Squibb / contact@dshedu.com
Feb 28 2008 01:06 pm
Dear Anne,
My name is Trisha and I live in Florida, I recieve approx 10-20 calls per week about this terrible disease. I have seen it first hand on many patients. I think I emailed you a couple of years back.
I finally, 2 weeks ago got a phone call from a Dr of Entomology in Florida who has seen a lot of people that came to him in the past year with "collembola and other parasites with fibers coming out of them."
He is very kind and called them lint balls, this is the first entomologist who has had the training to talk to people and listen.
I do not have this disease, but I am going to see him for 2 days this week and however long it takes to catalog my 2 boxes of specimens from patients all over the world.
I am going to show him your site, and Jose and Kathys site from Miami.
I have enough specimens that we can get some DNA testing done on them and look at what I think could be a few of the causative factors of this syndrome.
You have my prayers with you for Health and Peace of Mind.
Sincerely,
Trisha
commonsensescience@yahoo.com
Jan 21 2008 10:22 pm
Dear Anne,
God Bless you for having the strength and courage during this terribly debilitating illness to photograph and bring your story to the public. You and your family are in my thoughts and prayers. How dare the medical community dismiss you in your time of need. Let us know what we can do to help. Love in Christ, Karen
Jan 18 2008 08:26 pm
Anne,
We are praying for you. Let us know if we can do anything for you.
Jill House
Jan 18 2008 07:12 pm
Hello Anne - Although we do not have Morgellons Disease we have come to appreciate what we feel is an effective treatment of many difference diseases - RIFE TECHNOLOGY. This technology attacks most pathogens in the body; parasites, fungi, viruses and bacteria. Although there are many sites on the InterNet advising and selling Rife-type instruments, we have found John Wright of JWLABS to be an excellent resource and he is almost always available. Our hearts to out to you and your family - all the very best. Norman and Judith Thomas
Jan 16 2008 09:26 pm
Hi Anne-My wife and I just saw Nightline.We live in Wis. and both suffer from Lyme Disease with co-infections.We have been mis-treated by doctors for years until we found one who had the disease himself and have learned a lot.I have read about Morgellons for a few years and would bet either anti-biotics or even one of the Silver-containing products or any anti-parasitical would help your family.Our e-mail is dennannodon@yahoo.com We would love to communicate with you and help any way we can...Please write back !!!
Jan 16 2008 09:17 pm
Anne, I just saw your segment on Nightline tonight. We met a lady in TN that is experiencing the same symptoms and misdiagnosis. She uncovered some horrifying truths about this mysterious illness. She recently found a product that has just about eliminated all of her symptoms and restored her life in a very short time. I have information on the product. I would like for you to hear her story. Please contact me at terismith@windstream.net
Aug 17 2007 03:55 am
Did anyone notice sparkly webs or cottony webs made out of blue hexagon shapes that are clearly not spiders webs prior to infection from Morgellons.
Would you please take a look at this slide my daughter put up. My daughter is sick today and our dog has been sick since the strange webs appeared in our garden and she te the grass . The things(some kind of carbon life form I would guess)are invisible until x60 some x200.
http://www.youtube.com/watch?v=FgnNIBO3dJg
Please email me caroline@free-world.co.uk
Aug 10 2007 12:30 pm
This thing is real. It is effecting young and old. I have this for 3 yrs. It started after a spiter bite at work.
Jul 8 2007 09:19 am
i am chephzibah. my mutant children, they have tortured and murdered us, yet we shall live forever for out stint in hell. we are litareally tearing demons from our flesh in this war.
May 26 2007 03:59 am
Hi, My name is Bonnie & I am 40. This is the 1st time I have written anything on any Morgellons site. I just recently have been able to look stuff up on the computer. (It would just freak me out way too much.) Thank God for one of my friends, otherwise I would probably still think I was losing it. My #1 question is: HOW THE HELL ARE ALL OF YOU ABLE TO LIVE WITH THIS THING. I'm about ready to pull the plug. I have an extensive medical history & I'm not sure if I have the strength, courage or desire to fight this one.
At 14 I got diagnosed with Scoliosis. I had my 1st back surgery at 15. The most recent back surgery was 9/2004.
At age 19, I was diagnosed with Crohn's Disease. I had one intestinal resection back in 1989.
Last Jan. I called my Crohn's Dr. & told him that it was acting up. My typical regimen for flair up DID NOT WORK. Now I now why. It's the Morgellons.
I have also had a shoulder surgery and a foot surgery. My bones aren't that strong anymore due to taking Prednisone for so many years.
I have no idea when this started. I think the reasons I didn't notice certain things at first was because I had 4 cats & I'm a smoker. Also, I'm use to dealing with quite a bit of pain. As a smoker, sometimes you cough up some funky stuff. I just thought my cats were digging in the dirt, cat litter and shedding way too much. Surprise, surprise, it's not just them shedding, so am I. Now I noticed the difference. Unfortunately, I lost one of my cats last Sept. Now I think she had Morgellons. The vet did various test and could not figure out what was up. She stayed their on IV for a few days and when I picked her up the vet said that she was blind. She wasn't and her vision did get better. The vet was amazed she lived as long as she did. Now I understand, cuz the same thing happened to me. My vision & hearing got worse. One of the things that breaks my heart is that my other 3 cats now have it.
I have taked silver 3 different times & also given it to my cats. I think it's helping. (fingers crossed) The fist experience freaked my out. It was surreal. I'm still not exactly sure what happened. After being told you're delusional so many times, you start to wonder.
The last few days have been hard, but not like the first couple of times these things started popping off me like crazy. I think they are coming out dead, not sure. I noticed before that these insect things seem to be hatching from me. YUCK!! Well, the last few days they have been coming out, but they're not alive.
One thing that has help, don't ask how I figured this out, is to guide these things out. Follow their tunnel. The most important thing is to make sure you're going the right way. If I twist or guide them to the left, it only makes it worse. For me, right now, everything MUST BE TO THE RIGHT. Of course, that depends where you live. It seemed to me that these things had some kind of pull towards gravity, so I decided to do the opposite. Cleaning the gel-like crap is easier if I wipe in circles to the right. I'm trying to train myself to brush my teeth in little circles to the right.
CALL ME CRAZY, Oh I forgot, that's what the medical community does, but it seems to be helping. Try it, It couldn't hurt. Let me know if it helps.
I also use A LOT of Febreeze, Borax & baking soda around the house, on me, on the cats, the yard and the laundry. Just to make myself look just a little bit more crazy, when these things scared the hell out of me, I poured baking soda all over the house. My next task is to get the carpet out.
PLEASE, ANYONE that can help me with ANYTHING THAT HAS HELPED YOU, let me know. I have no clue how often or how much of the Silver I should take, but I think I will try some more tomorrow.
By the way I live in Los Angeles, anyone else out there close to me?
Please feel free to contact me at Bonbonfried@aol.com. I don't know, but maybe it would help me to talk to someone else that is living this HELL. If anyone could give me some hope, it would be greatly appreciated, cuz I'm running low..
Take care, Bonnie
May 11 2007 07:55 pm
PS: In my opinion the display of magnified images would not impress the medical community.
Anything under a microscope looks alien and ugly.
In my opinion your best illustrations are the pictures of the actual morgellon lesions.
This is what people see. The lesion is the real pain behind this disease.
May 11 2007 06:34 pm
I've suffered from Morgellons since 1987 while I was in the Navy.
My symptoms started out with embarrassing sores around the mouth, which I thought were cold sores.
Over the years these lesions spread to my face, scalp and arms. The sores would sometimes start out as a red or white pimple, or sometimes a splotch of skin becomes razed or discolored like a rash.
At this point scratching or picking causes the sores to bleed and seep, and the skin doesn't heal and turns into a crust. These embarrassing lesions usually take weeks or months to heal.
I have been to numerous dermatologists, and was told my problem was 'neuroses', and to just stop picking the scab. I was told to just learn to live with it.
Over the years I did a lot of reading and research on skin disorders and thought my problem was shingles.
It was only recently that I learned about Morgellons on the Internet. The classic Morgellons symptoms best describes my condition.
I can sympathize with the other posts regarding this disease. There's nothing
to cure it that I know of.
My symptoms occur in three to six month intervals, where I'll have lesions on the back of my face, neck, scalp, or arms.
For me the best topical treatment is to keep the lesion clean and apply calamine lotion.
Apr 30 2007 08:38 pm
I have been struggling with this condition since 1998. I recently sent samples to a lab for analysis and anticipate their results as soon as possible. I also am waiting for congress to take a break so I can meet with my local congresswoman Mary Bono, who already has a portfolio on this disease at her local office. I am requesting government funding for both Oklahoma State University and The Morgellons Research Foundation, in the absence of CDC interest. Please keep your hope as my waivers daily and I understand the NEED to be heard and understood. Bless you all...K Smith/Palm Springs, CA
Apr 25 2007 10:05 am
Dr. James Matthews, M.D. Endorses NutraSilver as an “Effective Therapy” for Some Morgellons Symptoms Edit
Written by James Matthews, M.D.
Wednesday, 18 April 2007
Disclaimer: This information is being shared for educational purposes only, and is not intended to replace a proper consult with your physician for healthcare. No one should practice medicine on themselves or others without a license.
Dear Morgellons Community Members,
I have some preliminary data indicating that NutraSilver is an effective therapy for some of the symptoms, in some of the patients, suffering with Morgellons Syndrome, and after new drug applications have been filed, endorse trials of its use for this mysterious condition.
About 2.5 years ago, I met my first Morgellons patient and three months later, I became a patient myself.
I sorted through all available data, what little there was, and came upon the link with Lyme disease made by William T. Harvey, M.D., M.P.H..
I used almost every available method of Advanced Western Medicine over a period of two years, including variations on: the Burrascano protocol; Shoemaker Biotoxin-binding protocol; Marshall protocol; Sherry Roger's detoxification protocols; a host of anti-parasitic medications; UV; Infrared; Saunas; Salt and C; Diatomaceous Earth; many immune boosters; regular Bikram, Dahn and Iyengar Yoga, and after all this, felt “ok”, and had been off of all prescription medications for about six months.
Then, about four weeks ago, I heard about NutraSilver and chose to try some personally.
Now, most people recognize that precipitation of a Herxheimer Reaction is a good indicator that your therapy is effective. In my case, I had precipitated these gently, and detoxified many, many times, and believed there was very little infection left in my body to cause a Herx. This turned out not to be the case. A unique, deep tissue Herx occurred which gave way to greater feelings of well being and physical health than I had previously experienced with any other method.
I recognized the potential value of this new therapy and immediately gave my two sickest patients my remaining samples.
In one of the patients, who had no lesions and had already been treated for about 1 year with my integrated protocol (above), we observed only slight improvement in his symptoms of creepy crawly and prickly sensations.
In the second patient, who had only just begun my protocol, and had been suffering with multiple bodily and facial lesions, the results were dramatic. Within days his skin started clearing. He declared he felt "very good", with improved mental processes and mood, and increased energy.
NutraSilver is a special suspension of Ionized, Colloidal Silver in distilled water. The suspension is created through a unique proprietary process where water is negatively charged and clustered so that the silver is well suspended, and theoretically better absorbed. Colloidal Silver has a long history of use as an antimicrobial agent, and there are studies showing that NutraSilver kills multiple pathogens in culture very effectively as well. I'm not aware of any toxicities with any, silver products, and the only significant side effect ever documented is argyria. This is an irreversible condition of grayish coloring of the skin that seems to occur when too much of the wrong kind silver is ingested. Best estimates indicate that a healthy 70 Kg person would need to ingest about 10 grams of Silver to be at risk for this condition. By contrast, 1 drop of NutraSilver contains only 0.090mg of Silver. In other words, a person would need to ingest over 100,000 drops of NutraSilver to even theoretically approach the risk for argyria. This may be why there has never been a single case of argyria documented with NutraSilver. Further, I've seen a study showing that properly prepared Colloidal Silver taken for two months is purged from the body at the same rate at which it is consumed. And, half of the remaining silver was purged within one month of stopping consumption. Taken together, this data suggests to me that the risk of argyria from NutraSilver is probably somewhere between extremely low and insignificant.
Before considering use of NutraSilver with your personal physician though, everyone needs to know that in 1999, the FDA had declared in a "Final Rule" that, "all over-the-counter (OTC) drug products containing colloidal silver or silver salts are not recognized as safe and effective and are misbranded." Ultimately, the FDA is the authority in this area, and this letter is in no way meant to undermine their authority.
On the other hand, we're dealing with a special situation here. To begin with, Morgellons wasn't widely known in 1999 when the FDA ruling was made, and even today, the CDC hasn't recognized Morgellons as a disease. Further, many people in the community are suffering so much that they may feel, after consultation with their personal physicians, that given how some have benefited, a trial of NutraSilver may be worth the tiny risk of argyria. Given how some are suffering, I can even imagine people feeling that trading Morgellons' lesions for argyria quite fair, and agreeable.
The choice to try it or not, is a very personal one, where each individual must consider: their degree of suffering; other options; costs; risks; the FDA's ruling; and most importantly, the recommendations of their personal physician. Further, I now know that at present, NutraSilver is classified as a nutritional supplement and can't officially be used for any diseases, symptoms, or relief, only water purification. So, any individual who chooses to use it off-label, does so, AT THEIR OWN RISK.
After consulting with their own personal physician, if anyone does choose to use NutraSilver for Morgellons, please let us know how it goes. We hope to compile data about any possible risks, and benefits, and use this information in a "New drug" application to the FDA for clinical trials.
Standing together now, we will find answers, and we will begin to offer more relief for those suffering.
Conflicts of Interest: A small percentage from the sales of NutraSilver is paid to Advanced Medicine, L.L.C., a new nonprofit company that I direct. 100% of the monies received go directly back into the support of clinical and scientific research in Morgellons. Using this method of funding, I hope to raise more money for Morgellons research within the next year, than all of the other organizations, in all of the previous years put together.
I will be available to answer some questions on the Morgellons Hope Community Forum.
Sincerely,
James Matthews, M.D.
Apr 24 2007 01:57 pm
I believe this disease is pandemic. Maybe more people will come forward as so many are so tired of being perscribed steriods and creams and ointments!!! I've had similar symptoms for a year and a half with the fibers. My rashes look just like your photos. Thank you for having the courage to publish your site.
Apr 6 2007 10:03 pm
Dearest Anne,
I continue to Fight this Fight for you all. I am signing petitions for change,
Working and Discussing with a few at the CDC, Have Spoken to a Few people and did the www.wsvn.com
"Body Bugs" Segment. We are seeing people get better with the New Hope Skin System, The PH Miracles by Robert O. Young and www.monavie.com. No pyrethines, no chemicals, no chemotherapy. I have been Advocating not using Amphotericin B. This was my greatest fear. This Drug is poison and will blast out the bone marrow of Human Beings. I wish you love and light and hope you are well. You may call me at 1-866-797-0510.
Trisha Springstead RN
Apr 5 2007 03:53 pm
Hi my name is Kim Im from British Columbia & I too have this disease .I have had every kind of anti parasitic drug given to me , collodial silver ,antibiotics I have used peroxide, I have bathed in bleach and water to no avail it will be one year in May I have written to my MLA but no response . Im going absolutely crazy my back and arms and buttocks is littered with lesions that never heal! My Drs have said I'm delusional they have given me anti depressants but the bugs or whatever dont go away neither do the lesions????? I did care for a mental patient that I believe had this but I was told by my Superior DOC that it was a blood disorder , funny no one else would bathe her that was always my job!!! I will be speaking with a Lawyer about this for not disclosing her disease to me. But I will not give up yet!! Although there are times when I just cry and do not want to be seen short sleeved. My husband doesnt sleep with me it horrible and something should be done for all that suffer from this afterall this is 2007 isnt it??? Just easier to say oh its DOP!!!! yssup69@msn.com
Mar 4 2007 04:25 pm
Jen Rua
Feb 16 2007 04:46 pm
Hi I just found this site today I recognized one person whom I've come accross on another site. I've had morgellons for three years. The long list of symptoms sounds so familiar to me and the experience of doubt and disbelief from others is also my history. After many therapies, I've arrived at the place where I'm trying to create the internal environment that negative organisms will devolve. So, I'm focusing most of my attention on alkalizing my blood and cleaning any debri from my body that could be nourishing this organism. There is a book titled THE pH MIRACLE by Robert O Young, PhD. His concept makes alot of sense to me. He teaches us how to get control of the negative situations going on in our bodies. Try to remember that we are only victims of our own beliefs. WE CAN CHANGE THIS Like you'all I am very curious about how we contracted this condition, but more importantly, we need to investiigate why we have'nt been successful in getting rid of it. What if we have the ability to alter it so that it loses it's power over our bodies. I believe that our bodies posses this ability and so does the author of the book that I am recommending. I have managed to reduce most of the symptoms but I still have work to do. Try to move your attention off of the problem and focus it on finding the solution. Please don't think I am lecturing you . I'm talking to myself aswell. We all need to remember that we are more powerful than any of this. I Love You All Please feel free to write to me. I am French Canadian but living in California, USA you can reach me at m-lynne@hotmail.com
Jan 31 2007 11:00 pm
What amazing photos.
Its been 2 months that I've been part of the morgellon society.
Last nite I went to a bible study and the subject of being thankful in all circumstances. I tried thinking of something to be thankful about regarding morgellons.So far nothing had come to mind other than the sweet knowledge that my dependence on God has grown. With that dependance has come a letting go of what my plan for my life was and just walking this journey. Plus I see there are some pretty fantastic people sharing this journey with me. Our paths would not have crossed without this common denominator. Now, if we get our heads together, perhaps we caneven find a cure.
shirley
Jan 27 2007 07:34 pm
I have been on this Morgellons journey for a year now. Visits to 7 MDS, with a DOP label with most. My husband became involved. Tried many different topical treatments, parasite cleanses. Had good help from a Chinese Medical Doctor. Even used EquaMax, a parasite product designed for horses. Applied topically it helped healed many lesions. A lot of things helped a little. Because I traveled this same road as a lot of you I wanted to share this with that after taking NutraSilver for the last 10 days I have seen faster healing than anything else I have used and It's simple to use. Drops in water. I found it on the internet, just put in NutraSilver. As my husband and I keep using it I will post what happens. We have Hope. MoonGirl
Jan 15 2007 06:44 am
I have had this for 6 months....I have all the symptons except the lesions....I have tons of samples that look like the morgellon pics I see....I had heard of morgellons briefly for years now and then on the news...when I first got this I thought I was the only one--was shocked to realize this was morgellons....
Jan 14 2007 04:14 pm
Hi all,
I was just wondering if there are any people in Queensland Australia who have this 'thing'...
Love to you all
Dec 25 2006 11:24 am
Merry Christmas to all who suffer from this affliction. May you be touched today and everyday by the power of God, of Jesus, of love, numbing the pain you endure, strengthening your faith that He is victorious over all matters in your life, past, present and future.
Also, concerning "alfalfa cure?"; just google and see the problems with alfalfa crops; yikes!
With love, hugs, and constant prayer, that you feel a "spiral of joy" between you and our Lord and Savior Jesus Christ, trusting that He will heal you and me!!! ML
Dec 18 2006 08:40 pm
Skin legions. Creepy crawling sensations . Fibers. The doctors think I'm crazy so I stopped going to them. Delusional I don't think so... I feel abandoned. I have used herbs for pparasites it helps relieve some but when I stop it all comes back. I know that it is a mite of so sort that has gone internal, and lays dormate some where in the body until it has babies. I think that that is when the sand like grandules come out of the pores. I can feel something moving in my back like deep in my lung muscle. I know that this sounds crazy it sounds crazy when I read what I write buit it is true.Please e-mail me My name is Pam (eel_map@yahoo.com)I need someone to talk to. Ann Dill if you are reading this please reply I have had this for 14 Years.
Dec 18 2006 08:26 pm
I have the disease nad have suffered for 14 years. This is a terrible problem and someone needs to take it seriously before the world is plagued. Please help us. Columbus Ohio
Dec 6 2006 02:59 pm
Thank you for the service you are providing to us all. Last night (After seeing the damage I had done to my own face desperately trying to remove one of those white-ish little plug-like things) a friend of mine gave me an article that she had kept for a couple years. I am a 35 year old man and though I will not try to claim I never cry, I have never broken down in the manner I did last night. Finally a name for what I believed was in my mind. (countless times I have been told "Stop picking at that there is nothing there!" or "your imagining it just dont worry about it" - countless times I have seen the face of a VERY concerned spouse or that of my parents) Morgellens. It is real. I wondered how something that was a creation of my apparently diminishing mind could be located PRECISELY and extracted with a pair of tweezers!
The emotional relief is as intense today as it was last night, (though sitting in a public library to reasearch this I am under a bit more control) and as the other computer station users around stare at me with tears streaming down my face as I type this. Well I dont care.
THANK YOU.
Mark
Portland Oregon
Dec 2 2006 02:48 pm
best wishes to everyone . Just wanted you to know you're not alone there are people constantly praying for you. Nothing new from here at the moment.
Nov 22 2006 11:11 am
marc,
we have been trying to get in touch with Ann Dill and Brandi Koch for some time. We have sent several emails to Dr. Greg Smith, and to several other osu email contact, and none respond. A month ago we sent an email to a fla
news media sight asking to help get us in contact with ann dill and brandi koch. We sent osu back in august several hair sample and clothing items
from my friend. she has suffered for seven years after using a product called renova 0.05%, developed by prof
albert kligman and patented by johnson and johnson. this product caused her skin to get deep chemical burn sores, and horrible black and white threads pointing out of her skin with crystal like objects attached that open and shut and claw like points at the tips.
no one will help prove that this product did including numerous lawyers and judges and news media in delaware valley. photos all showed a unnatural creature in her hair, neck collar bone.
one physician dr herbert fichman, now retired stated on disability papers skin infestation process and allergic reaction to drug chemical medicinal and biological substance induced. he never let her see this until after he retired last year. several physicians had left the state and their practices after see my friend, one of which stated she was delusional, that was dr robert finkelstein who suddenly left the state and went to florida. last year several physicians without examing her with her children there stated it was her imagination although admitting to seeing white lesions inside the lips and tongue and back of throat. she asked for a culture of eyes, nose, and mouth for microorganis and for toxins in the chemicals used on pamphlet she kept for seven years. instead he did a strep throat culture as all physicians did in the past because they knew it would come back negative. they then did the cruelest act of all tried to have her de
Nov 20 2006 12:53 pm
John S.-- please contact me at zink26401@yahoo.com!
Nov 18 2006 10:48 pm
I HAVE MORGELLONS!!!!!!!!!!!!
I have spent the last three months intensly studying bacteria, nematodes, crematodes, athrodes, fungus......and the like. I have spent over 150 hours (minimum) studying my own samples under a 3X powered microscope. I wish I had a way to take photos, I have samples of parasites and lesions that you do not have.
It appears to me that Morgellons is definatly associated to parasites, and the like. There is something that is causing the numerous different type parasites to be attracked to a human host. What I have noticed is that not every one has the exact same parasite(s). The lesions seem to appear almost alike in many ways, however some are more extreme, more chronic then others.
I have made alot of association to the symptoms of Morgellons and certain diseases that occur from parasite infestations. What I have learned is that they are in ways one of the same.
I do want to ask you if I can use one of your photos. I am writting to a Parasite specialist and I have no way of sending him any of my own photos of my own samples. I would be encourages if you and I could speak over the phone. If so, I will wait for your e-mail letting me know that I can contact you and we will find a way to keep the information private and off of the site. E-mail me at joelanddeann@rtconnect.net. I am on a mission, as you are as well. I want to prove my point but lack the equipment to do so. I need some photos.
Let me know-Thanks
Morgellons in Wyoming
Oct 25 2006 08:56 pm
Hi There. Thankfully, I do not have Morgellons, nor does anyone in my family. But I have been following the news reports and radio interviews since they started. My heart hurts for all of you who have this horrible disease! I have had fibromyalgia for 20 years and I remember when I was told that fibromyalgia is an imaginary disease! We need to force the medical cartel to start researching this before it is too late! Whatever the cause, GM foods, chemtrails, nano viruses etc. we must act now! I won't wait until someone in my family gets it! I will help by writing letters and making people aware of it now! A good way to get the word out is to make a documentry that can be copied and handed out to politicians and medical personnel. It does not have to be a high budget thing. It could even be a home movie. Something that will explain the disease, show some of the victims in order to humanize this horror! Just my 2 cents......my thoughts and prayers are with you all! hereticdeadfish@yahoo.com
Oct 23 2006 08:23 pm
just wanted to add is phone # here is tollfree (i have vonage) is 888-583-4950 dumb to give out number but this crap so bad i dont care anymore just would like to have someone to talk to about this. or can email me@ wakinyan@myway.com. my name is ann. feel so bad others have to suffer with this.
Oct 23 2006 08:05 pm
best pictures seen taken by amateur. i live in colorado springs. i also have morgellons only since september full blown october fifth. trying to keep in check until see doctor here was or is a board member on morgellons reseach foundation. only thing been helping me is a message board called morgellons-disease-research.com on of the main members buba has had over 2000 sores all over body mostly healed now. she and frankie who runs site are both medical people. my user name is amindincolorado we need resourceful people like you in there too and your family to share your photos of the reality of morgellons. i am lucky my husband left for nm to work good job on aircraft so he is not effected. my daughter was starting to have mutant bugs on scalp like me after 6 headlice outbreaks bugs were springtails and some unidentified wined abomination during lice outbreaks had black specks and fibers in hair. i managed to get rid of bugs on daughters hair and sent her to ex husbands she does not seem to have it.....yet i will protect my family even if have to be alone with my four sick pets. ty for the pics . if it werent for the support of my husband and family of his and mine i dont know what to do. i have a big 2800 square foot home and and now me and my four pets two collies and two cats are prisoners here as well.
Oct 22 2006 11:53 pm
Hi there. I live in Oakland Ca. and have been dealing with this for about 4 months. Now that I have come to recognize it's behavior, symptoms etc. I think I must have had it for over a year. It's actually my dog who is suffering the worst. I have spent thousands of dollars in the last year on vet bills and just recently I figured out what it is. It's making me crazy. It seems like all I do is clean. Sometimes I feel like cleaning just makes them mad because it get's so much worse. I have found that peppermint essential oil mixed with water works great. I put it in a spray bottle and use it to wipe down and clean everything. I just cant figure out what to do with my food. It seems as if they get into everything, the freezer, refrigerator, cabinets etc. I have pretty much stopped eating at home. Have any of you found something that actually works? I feel like I am living an episode out of the twilight zone. I am trying to move into another place and when I do I will pretty much get rid of all my furniture etc. in hopes that it helps to get rid of them..... Any advice is welcome. My e-mail is gemini_speaks@hotmail.com
Oct 19 2006 10:10 pm
My name is Sally. I have Morgellons disease and I live in British Columbia, Canada. We all seem to have the same symptoms, some more than others. This is my second bout of Morgellons. Where I got it is a mystery. 4 years ago I contacted this disease and it started with a high fever, itchy scalp and the itch spread throughout my body. It took me 9 months to get rid of it.With this outbreak it started with pains in my head and then itching. I now have a rash on my back (had this with the first outbreak)and my feet have been the biggest problem this time. I am using only natural products and I have managed to get the disease under control. I can sleep nights without feeling crawly and I have found a way to control the spreading of this disease in my own house. If anyone one is interested in my treatment you can contact me at skotoff@shaw.ca
Oct 18 2006 09:20 pm
There is something just not right about all of this. LM, is there any way I could call you or you could call me? I am in Texas. If I told everything that I've seen, they would lock me up for sure! I have had this for so long, I am at the edge of a cliff. I cannot understand why this hasn't been investigated earlier. I cannot understand why doctors "collectively" deny this crap. I can't understand why it took CDC so long to come into the picture (and only to throw Oklahoma off).
I don't understand why we aren't getting much information back. I don't know if we can trust the answer if we ever see one. How do we know this isn't bio terrorism?
Please have LM contact me if at all possible. My name is Sandy. I'm at 972.429.7472. Good luck to everyone.
Oct 14 2006 10:23 pm
I was bitten on the scalp by a tick and endend up with a high fever, extreame head pain and re-accurring low grade fevers, and extreame weekness, plus migraines.
Through the direction of others, I have learned to by a digital microscope to use with my computor, to take pictures of the nasty parasites that had me, [more then one type].
I'm guessing I'd got the Filarial worms from the tick, [atleast one of them anyway].
Multicellular parasites, [worms] are of two major classifications,,, roundworms and flatworms/flukes.
I have hundreds of VERY CLEAR pictures that all but my general practitioner, denys to be worm parasites.
The pathology lobs lied as well as the top parasitologist in my state.
I've taken pictures of various meats, dairy products and vegetable that I'd bought at our local "Super 1" grocery.
I found most of it to have round and flat worms and their juvenal and egg stages in it.
I've found the so called Morgellons fibers to be on and in the worms in the food .
I've found the fibers in the worms from my body.
Search google for filament web sites.
I found ones that show their are bacteria that make ratchet (anchored at one end type filaments, that live off of host and utilize decaying debree and other chemical componants at hand to build their filaments.
Olive Leaf Exstract, (standardized 5% to 23%) does kill it all!!!!!!
I took 5 vegetable caps of it 4 times a day.
Their are other herbal anti parasiticals and combinations that work great too.
The digital microscope that I bought and used with my computer is easy to use and cost just under $80.00 . "Digital Blue Q5"
I had also gotten Hookworm,,, a round worm that along with Strongyloides is in out commercially raised, proccessed and sold meats, dairy and vegetables.
LM
Oct 14 2006 10:08 pm
I just started to learn about this and it sounds very scary. Thank you for this site for its info and pics. I was told to see this iste from a person from
http://www.morgellons-disease-research.com/Morgellons-Message-Board/
Oct 14 2006 09:52 pm
I just started to learn about this and it sounds very scary. Thank you for this site for its info and pics. I was told to see this iste from a person from
http://www.morgellons-disease-research.com/Morgellons-Message-Board/
